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In Genetics in Medicine, Suther and Goodson11 listed a variety of challenges to integrating genetics into primary care: a dearth of genetics professionals, lack of knowledge about genetics among primary-care providers, lack of confidence, lack of referral guidelines, difficulty interpreting genetic tests, and difficulty explaining genetic risks to patients. In general, medical schools have not embraced the challenge of adequately educating physicians in genetics and genomics. S. and Canadian medical schools found that although more than three-quarters teach medical genetics Unless otherwise noted, the remainder of the section “Physician Awareness and Education” is based on the remarks of Joseph McInerney, Executive Director, National Coalition for Health Professional Education in Genetics.
In the United States, physician education will likely fall to the various professional societies. In contrast, the UK’s National Genetics Education Development Center is responsible for educating National Health Service (NHS) providers about genetics. 17 In the long run, many participants agreed that it appears that the health care system will need more primary care physicians knowledgeable about genomics and more genetic counselors. Genetic Counseling18 Genetic counseling is only beginning to emerge from the common misperception that it is primarily about inheritance of single-gene disorders and therefore is largely the province of obstetrician/gynecologists or specially trained genetic counselors and pediatricians.
We have a situation where public understanding, much less clinical understanding, is wanting. . Education, strategies for research, opportunities for learning about the uses and misuses, the role of promotion in terms of transparency and accountability, the relationship of private initiative to public responsibility . . the relevant determinants of appropriate regulatory response all framed in a dynamic environment where we can expect more will be learned increasingly over time. . These decisions are potentially life-influencing if not lifethreatening and [have] a very high consequence potentially for individual economic as well as physical well-being.